Access to proper medical care is crucial for individuals living with sickle cell disease (SCD). The Sickle Cell Association of Uganda is dedicated to advocating for improved healthcare services and facilities tailored to meet the specific needs of SCD patients. This includes ensuring access to early diagnosis, regular check-ups, specialized treatments, and pain management therapies. The association collaborates with healthcare providers, government institutions, and international partners to improve the availability of essential medications like hydroxyurea, blood transfusions, and folic acid supplements.
Through community outreach, the association helps bridge the gap between rural and urban healthcare services, ensuring that even those in remote areas can receive the necessary support. By promoting training programs for healthcare workers, the association aims to enhance the quality of care, helping SCD patients manage their condition and live healthier, more fulfilling lives. The long-term goal is to build a healthcare system that prioritizes the well-being of individuals with SCD and provides them with timely and adequate medical support
Together, we can work towards a future where every individual living with sickle cell disease receives the care, support, and respect they deserve.
We are a grassroots organization that represents the interests of patients in Uganda. We strive to change the widespread perception in Uganda that people with sickle cell disease are worthless and deserving of stigma and discrimination.